The new EBMT Registry was officially launched on the 24th of August 2023. This is a remarkable achievement reflecting several years of dedicated teamwork. This innovative platform replaces ProMISe and Castor, streamlining our data management practices for a more cohesive user experience.
The purpose of the EBMT Registry remains clear: to provide a pool of data to EBMT members to conduct studies, assess epidemiological trends, and ultimately improve patients’ lives. Currently, not all functionalities are present, but we are working hard to successively add additional features. In addition, we will continue migrating the remaining data from the ProMISe database throughout the remainder of 2023 and into 2024. We will keep you updated on all aspects of this process.
It’s important to highlight that terminology updates have been implemented. MED-A is now referred to as the Core Dataset, and while the launch of the Extended Dataset (previously MED-B) is planned for 2024, preparations are well underway.